10 Articles
10 Articles
The Brazilian driver and influencer Lito Sousa made his first video post on social networks this Sunday since the diagnosis of Creutzfeldt-Jakob disease, rare and rapid progression. In a recording, he made an appeal, in English, for Ionis Pharmaceuticals, the Brazilian Institute, Harvard and Mayo Clinic to evaluate his case and consider his inclusion in studies with experimental treatments. 'Unable to think that a miracle will happen': Lito Sous…
Influencer Lito Souza, with Creutzfeldt-Jakob disease, appeals to the networks for a spot in experimental study of Ionis; wife and fans ask for help.
The influencer and former aviation mechanic Lito Sousa made an appeal this Sunday, 23, to gain access to an experimental treatment against Creutzfeldt-Jakob disease (DCJ). This was his first appearance since the family released the diagnosis. Lito published a video on social networks. In English, he asked for help to enter experimental research. He directed the appeal to pharmacist Ionis Pharmaceuticals and institutions involved in the studies, …
The digital influencer and former aviation mechanic Lito Sousa, diagnosed with Creutzfeldt-Jakob disease, released a request on August 23, 2026 for access to an experimental treatment of the disease. In his first public statement after the announcement of the condition by his wife, the content creator shared a video on Instagram. On [...]
With rapid advancement of Creutzfeldt-Jakob disease, family mobilizes social networks to try study space in the USA
The influencer and pilot Lito Sousa, 59, appeared for the first time, this Sunday (23), after the announcement about the diagnosis of Creutzfeldt-Jakob's disease. In the video published on Instagram, he appears speaking in English and asking for help to get a job in some experimental study on the neurodegenerative disease with which he was diagnosed. Read more Lito Sousa's wife appeals for studies: ☆Save the love of my life 我 Great fashion name …
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