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"Up to 40 Seizures of Epilepsy a Day", Alicia, 11, Has a Single Disease in France

Summary by franceinfo.fr
Born in 2014, Alicia has a rare disease: the mutation of the SLC32a1 gene. A case so unique, that they are only five children in the world to be carrying this disease. To improve their daily lives, the family has founded an association to finance work.

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franceinfo.frfranceinfo.fr
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"Up to 40 Seizures of Epilepsy a Day", Alicia, 11, Has a Single Disease in France

Born in 2014, Alicia has a rare disease: the mutation of the SLC32a1 gene. A case so unique, that they are only five children in the world to be carrying this disease. To improve their daily lives, the family has founded an association to finance work.

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franceinfo.fr broke the news in on Tuesday, February 3, 2026.
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