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Rare Diseases, Mazzucato: "Synergies Between Institutions and Stakeholders Fundamental for Patient Paths"

"In the world of rar diseases a lot of skills are needed to make the care system work and improve it, and for this reason the moments of confrontation between different stakeholders are very important.Because of heterogeneous pathologies, with care needs that can vary also for the same disease and for the same person, it is essential that we evaluate what is effective and appropriate for the treatment, a reasoning that "sometimes is very persona…
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The Newspaper of the South Rare Diseases, Mazzucato: "More collaboration between regions and central level to ensure appropriate care" (Adnkronos) " innovation in rare diseases is certainly a key of turn" but it involves "cultural thought" and its translation into organizational actions to bring about what is truly innovative to people" . Monica Mazzucato, coordinator of the Interregional Technical Table Rare Diseases, in the margins of the firs…

"In the world of rar diseases a lot of skills are needed to make the care system work and improve it, and for this reason the moments of confrontation between different stakeholders are very important.Because of heterogeneous pathologies, with care needs that can vary also for the same disease and for the same person, it is essential that we evaluate what is effective and appropriate for the treatment, a reasoning that "sometimes is very persona…

·Bologna, Italy
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Rec News | Lontani dal mainstreamRec News | Lontani dal mainstream
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In the world of rar diseases many skills are needed to make the care system work and improve it, and for this reason the moments of confrontation between different stakeholders are very important.Because of heterogeneous pathologies, with welfare needs that can vary also for the same disease and for the same person, it is essential that you evaluate [...] L'articolo Rare Diseases, Mazzucato: "Synergies between institutions and fundamental stakeh…

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Rec News | Lontani dal mainstream broke the news on Thursday, October 1, 2026.
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