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Public Affairs and Patient Advocacy Leader Kim Isenberg Joins National Organization for Rare Disorders Board of Directors
Kim Isenberg brings over 30 years of expertise to NORD's board to enhance patient access and partnerships impacting rare disease research and policy.
- On Dec. 8, 2025, the National Organization for Rare Disorders announced Kim Isenberg's appointment to its Board of Directors in a Norwell, Mass. press release.
- Isenberg, who retired this year as Head of Global Public Affairs at Sanofi's Rare Blood Disorders unit, brings integrated experience in public affairs, drug development, and patient advocacy.
- Before joining NORD, Isenberg served on the University of Minnesota YMCA, Cowles Dance Theatre, and Women Winning boards, focusing on rare blood disorders in Minneapolis, and said `I am deeply honored to join NORD's Board of Directors and to contribute to the critical work of elevating patient voices, driving thoughtful health policy, and creating collaborative solutions that improve outcomes for the entire rare disease community,' Isenberg said.
- NORD said the hire strengthens engagement with more than 350 disease-specific member patient organizations and supports its mission to help over 30 million Americans living with rare diseases, Pamela Gavin, NORD Chief Executive Officer, said Isenberg's insight will be invaluable.
- Drawing on her rare blood disorders focus, Isenberg said `I am deeply honored to join NORD's Board of Directors` in her Minneapolis-based statement, supporting efforts to improve rare disease outcomes.
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LoudounTimes.com+23 Reposted by 23 other sources
Public Affairs and Patient Advocacy Leader Kim Isenberg Joins National Organization for Rare Disorders Board of Directors
NORWELL, Mass., Dec. 8, 2025 /PRNewswire/ -- The National Organization for Rare Disorders (NORD®), a leading rare disease patient advocacy organization, today announced the appointment of Kim Isenberg, a retired industry veteran with more than three decades of public affairs…
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Leaning Left4Leaning Right3Center6Last UpdatedBias Distribution46% Center
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46% Center
L 31%
C 46%
R 23%
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