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Lito Sousa Appears for the First Time After Diagnosis and Appeals for Study

Summary by UOL
Influencer Lito Souza, with Creutzfeldt-Jakob disease, appeals to the networks for a spot in experimental study of Ionis; wife and fans ask for help.

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The Brazilian driver and influencer Lito Sousa made his first video post on social networks this Sunday since the diagnosis of Creutzfeldt-Jakob disease, rare and rapid progression. In a recording, he made an appeal, in English, for Ionis Pharmaceuticals, the Brazilian Institute, Harvard and Mayo Clinic to evaluate his case and consider his inclusion in studies with experimental treatments. 'Unable to think that a miracle will happen': Lito Sous…

·Rio de Janeiro, Brazil
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Influencer Lito Souza, with Creutzfeldt-Jakob disease, appeals to the networks for a spot in experimental study of Ionis; wife and fans ask for help.

·São Paulo, Brazil
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The digital influencer and former aviation mechanic Lito Sousa, diagnosed with Creutzfeldt-Jakob disease, released a request on August 23, 2026 for access to an experimental treatment of the disease. In his first public statement after the announcement of the condition by his wife, the content creator shared a video on Instagram. On [...]

·Brazil
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The influencer Lito Sousa appeared for the first time on social networks after his wife, Mila Seidl, revealed that he was diagnosed with Creutzfeldt-Jakob disease (DCJ).In a video published this Sunday, 23, Lito made an appeal to gain access to experimental studies that investigate alternatives against the disease. Among the research cited by him are one conducted by Harvard University and another linked to Ionis Pharmaceuticals.Fans mobilize on…

Lito Sousa was diagnosed with Creutzfeldt-Jakob disease (DCJ). His family asks that he be included in experimental studies.

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Metrópoles broke the news on Sunday, August 23, 2026.
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