US EditionFund for Catastrophic Diseases Operates Between Deficit and Arbitrariness
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Fund for Catastrophic Diseases operates between deficit and arbitrariness Despite the high costs of the treatment of complex diseases and the enormous economic need of the population, the government distributes the funds arbitrarily and opaquely. By Jeniffer Wiscovitch and Gabriela Carrasquillo Center for Investigative Journalism At only 12 years old, Ian M. Ayala Martínez has been operated on by his ankle and right leg five times, processes th…
Centro de Periodismo Investigativo
La Perla del SurAt only 12 years of age, Ian M. Ayala Martínez has been operated on by his ankle and right leg on five occasions, processes that have been very difficult for him. He has faced the surgeries with courage and with the support of his mother, who only seeks that his son can live without pain. Ian was born with a rare condition called fibular hemimelia, which affects the normal development of the bones of the legs. That is why he has one leg longer t…
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