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Finding the Missing Piece: One man's journey to a von Willebrand disease diagnosis

  • Frank experienced severe nosebleeds and complications from blood transfusions, leading to a diagnosis of von Willebrand disease.
  • Carla supported Frank by researching symptoms and accompanying him to medical appointments.
  • Frank described receiving his diagnosis as a turning point in his life.
  • He feels positive about his treatment with VONVENDI, stating he found a new path forward.
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Finding the Missing Piece: One man's journey to a von Willebrand disease diagnosis

(Family Features) “I wanted to live my life like there was nothing wrong, but the fear was always there.”

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The Billings Gazette broke the news in Billings, United States on Monday, December 8, 2025.
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